2026
Were here! We are hanging in there but we’re still here!
We had a mellow New Years spent at home, it wasn’t the plan, we were supposed to go to a friends house, but Hutton was having major light sensitivity, so we stayed home and made the most of it, ringing in the New Year together as a family.
The last week Hutton has been feeling really good, and she has been able to be really active. Jeremys work gifted us Disney tickets for Christmas and so we were able to spend a day at Disney (Mimi even joined us!). Hutton had an absolute blast! It was a blessing to be able to see her enjoy herself and just be a kid. We were also invited to the Shea Therapeutic Riding Center with the NEGU foundation. Hutton was able to sit on a horse, walk a horse, and pet some adorable animals. Since we are not doing chemo this week, as scheduled, because of her numbers we have been too low, she has been able to hang at home, go to hobby lobby, see friends, and visit me at work, which I am sure she thought was super boring 😂.
I am not sure if we have already mentioned it, but Hutton is on a new chemo. She has had it 4 times now, and we are still figuring it out. The first and second times she had a reaction (red face, itching, swelling). The third round we tweaked a few things with her “support” meds and she didn’t have any of the previous reactions, BUT she had really bad nausea when we left the hospital which we have never dealt with before. The fourth round she had a minimal reaction (red face, itching, swelling) and a little bit of nausea. The fourth round her doctors lowered her dose by 25% because her body was having such a hard time with this chemo.
She has been feeling good, but her numbers in between chemo have been dropping SO LOW and not coming up as quickly as they should, so even though the new chemo has her on a 3 week schedule (5 days of in patient chemo and 3 weeks off) she has been delayed, and have it seems she will on more of a 4 week schedule.
This week Hutton had to get her labs done multiple times, and has done such a good job with it. We found out today that her numbers have reached at least the minimal requirement for admission, so she will be returning to the hospital next week for another 5 day chemo treatment.
